Friday, November 28, 2008
Updates on Baby Ben...
I am so sorry I haven't had time to update my blog in a while, this is the first time I have been home in a long time. I can't believe Ben is going to be 2 weeks old tomorrow. Being at the hospital is a rollercoaster everyday. There's good and bad news constantly. Clinically, his vitals are improving, but we had some bad news from the last echocardiogram on Tuesday. It showed the leaking in his mitral valve is worse than it was before the open heart surgery and his aortic valve is just a mess as well. We are hoping that when they repeat the echo on Monday the rest he has had will have made some improvements. They pulled the breathing tube out yesterday but ended up putting it back because after about an hour of doing fairly well his heart just didn't have the energy to breathe any more. It was really, really scary. Cody and I have started taking turns at the hospital and coming home to try to give the girls some normalcy at home and to break out of the depressing environment and recharge a little. I was aching to be with the girls but it is devastating to drive away from little Ben in Salt Lake. Thanks everyone for your continued faith and prayers...they really help.
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9 comments:
Hey Ang-- Thanks for your post-- it's good to have some news when I'm so far away. It is hard to gone and not able to see you all and be with you. I'm sad to hear Ben's trouble with breathing, but know it just takes time to heal. I miss you and love you. I think about you guys all day long and hope you're holding up all right through this trying time. I know you're strong enough to get through this trial, with Father in Heaven's help and our love and support. Anything I can do? Please let me know. Love you all, Laura
Yay you posted! And I get to be the FIRST one to comment :)
I talked to Mom and she said that they told you that Ben not being able to breathe on his own quite yet is normal and that was a relief!
You and your cute fam are always in our prayers.
We love you guys and we hope that if there is anything we can do you will let us know!
Love you sis
Oh my goodness, I cannot get over how precious he is. Please, please let me know if there is anything we can do for you. I would love to watch your girls if you need help. Thanks for the update and keep 'em coming when you have time, we are thinking of you!
He is such a beautiful baby! You are all in our prayers and we pray that Ben can become stronger and his heart will begin to heal. Thanks for keeping us updated.
Ang-you don't need to be sorry for taking "so long" to post-you've been a little busy...give yourself that! I am so glad to see pics, though. Benjamin is absolutely adorable. Make sure you let me know if and when you need anything-I'll bring you dinner-especially since you were so nice to be the only one to bring me yummy dinner:-) Our thoughts and prayers are always with you and your family. ~Love ya bunches~
Thanks for the update. Ben is so darling. It's fun to see pictures of the sweet little guy, but hard seeing the ones of him attached to everything and so sick. I can't imagine what you are going through. I hope Mondays echo shows improvements and he continues to get stronger each day. Love you guys!
Angela,
I can't believe how adorable he is. He just looks so peaceful even with all he has gone through. I am glad to see you get some time at home but know that is hard too. If your girls need some time to play send them over anytime. We would love to have them and they might like a change of pace.
I can't stop thinking of you all. You really are in our prayers. I can't imagine what a roller coaster this all is. I know you wish you could just stop and get off to a normal life. Time has a way of softening the edges around the rough spots. Hang in there. We are all praying for you!
You two are so strong. Keep your faith, and know that you are constantly in my thoughts and prayers.
Oh Angela, I pray for you and your family. How hard to bring a little one into this world and have him be so sick in such a tiny body. I hope everything turns out ok for him. darling pictures. Please let me know if I can do anything. Hope he gets to come home soon.
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